Traduction de «Soins centrés sur le patient » (Français → Anglais) :

The debate goes beyond patient mobility and covers many other areas, such as information for patients, patients’ rights, the movement of professionals, cooperation of healthcare assistants, centres of excellence, exchange of best practice in all areas that could contribute to effective cross-border healthcare for the benefit of patients, the citizens – our foremost concern – without creating any unnecessary burden on the healthcare systems in the Member States.

The debate goes beyond patient mobility and covers many other areas, such as information for patients, patients’ rights, the movement of professionals, cooperation of healthcare assistants, centres of excellence, exchange of best practice in all areas that could contribute to effective cross-border healthcare for the benefit of patients, the citizens – our foremost concern – without creating any unnecessary burden on the healthcare systems in the Member States.

TAKES NOTE of the fact that according to the special Eurobarometer survey ‘Patient Safety and Quality of Care’ just over half (53 %) of all EU citizens think that patients could be harmed by hospital care in their country, while half of the respondents think that they can be harmed by non-hospital healthcare and that these percentages have not significantly decreased since 2009.

27. Welcomes efforts to move towards European Centres of Reference and the potential benefits that this will bring for treatment of rare diseases; recognises that patients affected by a rare disease or condition may often require greater support in accessing such specialist care; calls for the setting up of European Centres of Reference not to be limited to rare diseases but to be extended to cover all diseases for which a specia ...[+++]l concentration of resources and expertise is available; emphasises that, in addition to treating these diseases, European Centres of Reference should also play a prominent part in obtaining second opinions and in further training for medical specialists;

27. Welcomes efforts to move towards Centres of Reference and the potential benefits that this will bring for treatment of rare diseases; recognises that patients affected by a rare disease or condition may often require greater support in accessing such specialist care; calls for the setting up of European Centres of Reference not to be limited to rare diseases but to be extended to cover all diseases for which a special concent ...[+++]ration of resources and expertise is available; emphasises that, in addition to treating these diseases, European Centres of Reference should also play a prominent part in obtaining second opinions and in further training for medical specialists;

In 2012, the project RARECARENET (Information Network on Rare Cancers)[46], which built upon some of previous activities of the Project RARECARE (Surveillance of Rare Cancers in Europe)[47] which provided estimations for incidence, survival, prevalence and mortality for all rare cancers. The project aims (i) to provide updated indicators of rare cancer burden, (ii) to collect and disseminate information on the health care pathways for rare cancers, (iii) to identify the criteria for centres of expertise for rare cancers, (iv) to produce and disseminate information on diagnosis and management of rare cancers, (v) to develop a clinical dat ...[+++]abase on very rare cancers, (vi) to provide new knowledge on these diseases and their clinical management, and (vii) to develop and disseminate information for patients including a list of patients’ associations dedicated to rare cancers. In 2013, the European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment (ExPO-r-NeT), to support the provision of healthcare to children and young people with cancer in a Member State other than the Member State of affiliation, when the expertise with certain cancer conditions is rare and case volume low, contributing to provide cross-border best care to rare childhood cancer populations.