Translation of "Trouble de sensibilisation centrale " (French → English) :

Maintain the EU’s coordinative role in the development of the EU policy on rare diseases and to support Member States in their activities on the national level. Continue to support the development of high quality National Rare Diseases Plans/Strategies in the European Union. Provide continued support for the International Rare Disease Research Consortium and initiatives developed under its umbrella. Continue to ensure proper codification of rare diseases. Work further to decrease inequalities between patients with rare diseases and pa ...[+++]tients suffering from more common disorders and to support initiatives promoting equal access to diagnosis and treatment. Continue to promote patients empowerment in all aspects of rare diseases policy development Continue activities increasing public awareness about rare diseases and EU activity in this field Make use of the Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare to bring together European Reference Networks on rare diseases. Support the development of the tools facilitating cooperation and interoperability of the European Reference Networks for rare diseases. Stimulate development and use of eHealth solutions in the area of rare diseases. Implement and continue support for the European Platform on rare diseases registration. Continue playing a global role in the rare diseases initiative and collaborating with important international stakeholders.

Its launch is an opportunity to take this dimension of the disease into account, providing a framework for awareness-raising activities and the exchange of good practices in addressing Alzheimer challenges, as a strand complementing the Pact's focus on mental health, well-being, and disorders.

Integration and awareness campaigns against ‘dys’crimination in schools, workplaces, sport and everyday life are needed, as is access to the health service, in order that such dysfunctions – sometimes purely physical – do not compromise the personal and working lives of sufferers and their families.

21. Calls on the Commission to promote initiatives aimed at exchanging best medical practices in a variety of healthcare settings as well as promoting independent and impartial information campaigns designed to raise awareness about the risks of hazardous and harmful alcohol consumption; campaigns should also be directed towards people vulnerable to neuropsychological disturbances, syndromes and diseases and to people who are old, lonely, separated or isolated, as they are more exposed to seeking relief in alcohol consumption, thereby further damaging their condition and increasing their risk of suffering neuropsychological disturbances ...[+++], syndromes and diseases;

17. Calls on the Commission to promote initiatives aimed at exchanging best medical practices in a variety of healthcare settings as well as promoting independent and impartial information campaigns designed to raise awareness about the risks of hazardous and harmful alcohol consumption; campaigns should also be directed towards people vulnerable to neuropsychological disturbances, syndromes and diseases and to people who are old, lonely, separated or isolated, as they are more exposed to seeking relief in alcohol consumption, thereby further damaging their condition and increasing their risk of suffering neuropsychological disturbances ...[+++], syndromes and diseases;

Neurological disturbances associated with diseases or surgical intervention affecting the central or peripheral nervous system, which lead to sensory or motor deficiencies and affect balance and coordination, must accordingly be taken into account in relation to their functional effects and the risks of progression.