Traduction de «genetic counselling » (Anglais → Français) :

The European Group on Ethics stated in its Opinion Nr 6 on ethical aspects of prenatal diagnosis (20 February 1996) : « Careful genetic counselling, both before and after the test is an integral part of the test and should not be separated from sampling and testing ».

– how to provide expert genetic counselling to prevent abuses occurring when genetic testing is incorporated into clinical practice;

19. Calls also for the adoption of minimum standards on the use of prenatal genetic diagnosis, which, in addition to expert genetic counselling, also provide for independent psycho-social counselling and at least rule out the possibility of prenatal DNA tests being carried out in order to predict eye colour, hair colour, size and intelligence (even where a certain degree of probability exists); takes the view that determination of sex in connection with prenatal diagnosis should be permitted, if at all, only if there is a chance of serious gender-specific diseases;

43. Notes that the growing tendency to gather genetic data highlights the problem posed by the spread of monitoring and control policies made possible by the different technologies; policies whereby genetic information is appropriated for private use cannot be considered admissible, even when they are accompanied by nominal guarantees to the effect that the rights of the persons concerned would be respected because the data would remain anonymous; it is becoming essential to lay down an institutional framework to enable access to tests to be geared to genuine health protection requirements and prevent the existing rules from being circumvented via direct access to tests which bypasses the need for information based on ...[+++]genetic counselling;

Tests which are predictive of genetic diseases or which serve either to identify the subject as a carrier of a gene responsible for a disease or to detect a genetic predisposition or susceptibility to a disease may be performed only for heath purposes or for scientific research linked to health purposes, and subject to appropriate genetic counselling.

29. Stipulates that predictive genetic tests may be performed only for strictly medical purposes or for purposes of medical research and subject to appropriate genetic counselling; recalls that everybody is entitled to the protection of their personal data and that any form of discrimination against a person on grounds of his or her genetic heritage is prohibited; therefore supports the amendment of Article 13 of the Treaty establishing the European Community when it is next revised;